Friday, February 11, 2011

Should I be scared??

So for some of you who know me personally know that for the last 6 years of my life I have been on a health roller coaster, and I mean truly hellish in some ways if you ask me. And well, my parents have taken the brunt of it and taken the bigger burden by watching me suffer it and then taking the support financially and emotionally. It has not been fun by any means, but trust me when I say I have learned some amazing life lessons in the process and through every seizure, knee surgery, blood test, and therapy session grown into a better woman. I will also thank the heavens that I went through this now and not later on when I have children and million other things to do. 

That being said we have really reached the basement level on all of this! I am so happy with this NP we have found (if you are in Provo and need a good OB/GYN Heidi Mcsweeny is AWESOME! Love her!) who has really gotten to the root of so many of my issues. I think we can finally put that past behind me and can move forward even if it is going to take a little while for this medicine to kick in. Monday I have another blood test to see how it is working and Wednesday another follow up appointment to see how all that should be checking out. So on the hormone side of's all looking up!

On the whole other spectrum is this new issue that has suddenly decided to show up in my life and that is this Chronic Migraine Syndrome. Does anyone have this or know of anyone who does?? I have started to do some research and I don't know if I should be scared?? This literally has taken over my life and I am completely flat in bed every day. If you have ever had a migraine you know how much it hurts and how badly you feel you want to die and even how crappy you feel the next day. And to be honest, I thought I was sick when I was having seizures all the time, but that doesn't touch how I feel lately. One migraine is bad enough, but right now I have sometimes 6 to 12 a week and that really makes me mad. The Topamax I feel like has cut them down to maybe 5 to 10 a week sometimes, but I have a migraine almost every day and in between each migraine I feel horrible. I am literally nauseated all of the time, sore muscles, depressed especially right before the attack, sensitive to light and sound, insomnia, fatigued, and tension headaches where the migraine happened. The reason I am putting this on here is not to complain but just to see if anyone else has dealt with this, because when I have done research I have only found grim results of people dealing with this for years and years and ruining their lives....

so should I be scared?

Because I am kind of scared. I can only watch so much TV and it has already been over 2 months of laying down so....any and all comments and prayers are totally welcome!



Michelle said...

Chels you are one of the strongest people I know. You always have such a great attitude about everything that you're going through. You're in our prayers always. Love you!

Karlie said...

Hey I stumbled across your blog the other day! I had a friend that had the same problem. He would have seizures and then they slowed down and pretty much stopped, but then he started having chronic headaches and migraines. They did test after test and they couldn't figure out anything. He went to a specialist in Salt Lake for his heart and did a test where they could see the heart. He had a hole in his heart and they ended up doing surgery to repair it and he hasn't had a problem since. Just a suggestion. They normally don't think to look at your heart. They focus on your brain as you know. haha I don't know if the situation is the same but I thought I would let you know just in case it is. If you want any more information about the test or doctor he went to I would be happy to find out for you. Hope you start feeling well soon!


Chelsea Michelle said...

Gosh I just love you girls! Thanks so much. And Karlie I am going to talk to my doctor on wednesday about that! Thanks so much! Miss you Michelley!